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DestinyThe girl with the heart ON her body

The cheerful Virsaviya carries her heart under her breast - a rare disease that must be costly to operate
Photo: Virsaviya Warrior / Private

This girl carries her heart in another spot: Above the rib cage

Six-year-old Virsaviya Borun suffers from a rare disease in which her little heart does not grow protected from the rib cage but beats ON her chest.

She suffers from the so-called thoracoabdominal syndrome - among one million babies, just five suffer from this disease. At the time of birth, the heart and intestines are outside the body. You can see the fist-sized heart beating. Virsaviya also lacks some ribs, some muscles - and the diaphragm.

In Russia, her home country, the doctors could not help her because this disease is very rare and little is known about medical science in this area. Virsaviya's single mother, Dari, flew with her to the US, from city to city, to clinics and hospitals - all of them refused treatment. Too risky was the intervention.

The Boston Children's Hospital finally agreed to operate. Dari immediately decided to move to the US.

Virsaviya

Posted by Virsaviya Warrior on Wednesday, February 17, 2016

After further investigation, the children's hospital in Boston had to withdraw their consent: Virsaviya also suffers from hypertension, which significantly increases the risks of the operation.

So the six-year-old must take medication for at least two years until her health improves so much that surgery can be performed.

These drugs are - as well as the complicated surgical procedure - very expensive. Virsaviya's family needs financial support. Overall, the girl lacks $ 200, 000 (about 180, 000 euros).

Through the crowdfunding site YouCaring, Dari tries to collect the money for her daughter's surgery.

Virsaviya has to be careful to not hurt her heart while playing and romping

Posted by Virsaviya Warrior on Saturday, October 31, 2015

YOU CAN DONATE UNDER:

https://www.youcaring.com/medical-fundraiser/bathsheba-s-heart/307730

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